MS and Your Future

It’s funny how your life is made up of distinct periods of time that encapsulate defining moments.

For me, the most pivotal moment came in 2011 when I was diagnosed with MS, splitting my life into pre-diagnosis and post-diagnosis periods. But there are defining moments after diagnosis as well. There is pre-wheelchair and post-wheelchair, of course. A year ago, I was in the hospital, so there’s that as well.

There’s no way to predict how your condition will change throughout your life. MS comes with a lot of uncertainty.

Everyone with multiple sclerosis is a little different, so your plan has to be very personalized. You need to hope for the best and prepare for the worst.

You need to get smart about MS. The best way to start planning for your future is to become your own advocate. Find out everything you can about multiple sclerosis and its treatments from reputable sources. Learn how MS can behave and stay informed so that when symptoms begin, you will know your options.

I didn’t know I would end up needing a wheelchair but when my husband and I were searching for a home we definitely kept that in mind. An accessible building without obstacles was a must.

It’s also important to understand all your health coverage benefits. When I needed to be admitted to the hospital last year, I took advantage of FMLA so I didn’t lose my job.

Finally, you need to develop a financial plan. As a chronic condition like MS progresses, it could have an effect on your employment and earning power. You need to be ready to control MS not just physically and emotionally, but financially - work with a certified financial planner to prepare for your future. And contribute to a retirement plan while you can.

It’s important to take control of what you can and prepare yourself and others for what may come. An uncertain future does not need to be an uneasy one.