We who live with a chronic illness
know how everything can change in one day. Diagnosis changes everything. At the
same time, the change has already been happening for a long time, as we have
likely lived with the disease for years before we hear the confirmation of that
diagnosis.
I don’t dwell on it but I can’t escape it, either. I can’t
escape what the disease has done to my body. I am unable to simply forget that
it’s there, and I’m still not
comfortable with all of the
aspects of living my life with an incurable disease. I’m learning my way through every day, every setback, and every
progression.
With progressive illness, the
losses just keep mounting, and life becomes a constant exercise in adaptation.
I'd never have thought I'd have the capacity to adapt to the level of
disability I'm now experiencing. I know that I don’t give myself enough credit
for doing as much as I do - MS and all. As Christopher Robin said to Pooh, “Promise me
you'll always remember: You're braver than you believe, and stronger than you
seem, and smarter than you think.”
Rachel, I see you live Christopher Robin's quote. You are brave, so very strong, and extremely smart. You are exceptional!
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