Ready? 1, 2, 3!

Sometimes I think the theme to my life with MS is “Ready? 1, 2, 3!” This is what I say to myself to get me ready to transfer on my own. I also say this to my husband or other people helping me out so we are on the same page and ready to move. Go on 3.

One of the hardest things about MS is dealing with the loss of independence. Unfortunately, I know what dependence feels like. I relate to the discomfort of relying on others. I find myself feeling guilty every time I have to ask for help.

But maintaining control and independence in everyday life doesn’t necessarily mean doing everything the same way you did it before. By allowing yourself to do things differently and using assistive devices – there are an array of energy- and labor-saving tools and devices that allow you to stay active and productive - can save you energy  Physical and Occupational Therapists can help you modify your environment to optimize control and independence. I have grab bars next to heightened toilets, a bed rail, have reacher/gabbers placed around the house, use a shower transfer bench, and use a riser recliner.

I have to remind myself that it’s not my fault. MS progresses because that is the natural course of the disease. Do not mistake needing help for weakness, or independence for strength.