Sometimes
my MS seems to be a continuous series of things I can't do anymore and places I
can’t go anymore.
The Americans with Disabilities Act (ADA) was signed into law
on July 26, 1990, by President George H.W. Bush. The ADA prohibits
discrimination and guarantees that people with disabilities have the same
opportunities as everyone else to participate in American life.
It’s been over 25 years since the ADA was signed into law and
unfortunately progress has stalled. I’ve seen things that confirm this for me. When
a place, particularly a business, claims to be wheelchair accessible, a lot of
times it really isn’t – it is only accessible to the minimal required
standards. They think that just because there isn’t a step to enter the
establishment it is accessible. False! The doorway may be too narrow to accommodate my
power wheelchair, the door may be too heavy or awkward for me to open on my own
or there isn’t an automatic door. Public restrooms often don’t get it right
either. Many times there isn’t a support
bar next to the toilet that is an ADA regulated height.
The thing is: ADA is not an accessibility guideline, it is a
law. Using your accessible
bathroom for extra storage doesn’t cut it. At an accessibility conference in
Melbourne, Australia in March of last year, the main speaker (who was in a
wheelchair) had to be carried on stage because there weren’t any ramps. At an accessibility conference, the stage
was not accessible. You can read more about this story here.
Over the Christmas
holiday, my husband and I planned to take a short trip to Monterey, California.
We reserved an ADA accessible room at a fancy hotel and confirmed they had the accessible
features most important to me: a support bar next to a heightened toilet. After
we checked in, we went to our room. There was a support bar next to the toilet
but the bathroom was very tight; the huge marble sink was perpendicular to the
toilet making it impossible for me to line up my power wheelchair for a
transfer. Before heading to the main desk, we checked out the restrooms in the
lobby on the Bay side of the hotel. These were not configured well for my use. We
then went to the main desk and spoke with the manager. The only thing he could
do was transfer us to a new room on the inland side that was not accessible but
had and accessible bathrooms in the lobby. So every time I needed to use the
restroom I had to go to the lobby. This would have to do. We ended up cutting
our vacation short because of this inconvenience. Sadly, I was not that
surprised, merely disappointed.
Wouldn't it be great if input was sought from people with disabilities when designing spaces in the first place, obviously there is a total lack of understanding ... and I am the first to admit that I personally would not be competent to determine the needs of anyone ... unless and until I experienced the same ... great talk Rachel, please keep on educating us ... and happy new year dear soul, to you and Adam
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