Saturday, February 13, 2016

It's Not Your Fault

Multiple Sclerosis is real. Its symptoms are not imagined. It’s not caused by a person’s lifestyle or by an unhealthy diet. There isn’t a specific cause for MS and to this day there is still no known cure.

Developing an illness like MS is not our fault. Nobody knows why we got it or where it will lead. Yet I often feel that if I had done something differently or tried harder, the outcome might have been different.

If you’re me, you hear these things all the time:
“She cut out gluten and started doing yoga and she does not have MS anymore.”
“Stay away from MS drugs and Western medicine.”
“Go vegan.”
“Go Paleo.”
“I know someone with MS who runs marathons!”

I was diagnosed in 2011 and have already progressed to Secondary Progressive MS in less than five years. Should I have taken up yoga and gone vegan the second I was diagnosed? Maybe. But I was in a “newly diagnosed” fog and was just trying to get a grip on my new life. Besides, I’d been misdiagnosed for 10 years. I had spent those years trying to figure out what was wrong with me. I didn’t know what I had let alone how to fix it.

I think a healthy lifestyle and a positive attitude is important; Eat healthy, don’t smoke, and everything in moderation. I wouldn’t abandon conventional MS treatment for alternative therapies, even if they're natural remedies. Blend complementary and alternative medicine, or “CAM therapies” with traditional medications. Find a doctor you like. Be your own advocate.

A friend of mine once said, MS is a neurological disease not a muscular one. I have to remind myself that no amount of exercise will fix me. It is possible to do all the ‘right’ things, exercise, eat properly, avoid stress, and so on, and have a recurrence of the disease. It is also perfectly possible to do all the ‘wrong’ things and not have a recurrence. 

It’s not my fault. There’s nothing I did to get the illness or make it worse.